Hello,

I had a setton placed in my fistula 2 weeks ago, just seeing peoples recovery. The pain got better once the initial soreness went but am getting a lot of pain again. I’m on antibiotics incase of infection but just seeing how long I should expect pain for, I know everyone is different but just want to know people’s recovery. Thanks for all help 😊 ... See MoreSee Less

I had a major blockage which lasted a couple of days, it cleared itself last night.

But all the output is now going straight into my disconnected jpouch instead of my loop ileostomy stoma bag. I've cleared out the blockage which also bypassed the bag. I've just had dinner and I'm beginning to get the urgent need to rush to the toilet again. I can barely hold it in.Barely anything is going into the bag, except for a little bit of water and lots of gas. What's going on, and will it correct itself?If it doesn't, I can't live like this as I'm unable to hold it in my jpouch for long, and I'm rushing to the toilet a lot. ... See MoreSee Less

Apologies if you are not able to register for the **Prof John Nicholls** webcast this evening - for the first time, we have reached our capacity of **100 attendees**! But don't despair, as we will also be streaming live on this facebook group, starting at 7:30 pm.

Prof Nicholls is considered to be the father of the J pouch, and he will be speaking on the subject of "*40 years of colorectal surgery*". ... See MoreSee Less

Hi all, just need a rant / looking for advice.

I had my J pouch created last February, after having a stoma for 2 years. My final surgery was last June to connect my pouch up and remove temp stoma from February pouch creation surgery.Since then all I have had is problems - horrendous bum burn, severe back problems, emptying pouch upto 20 times a day, and night - completely loose and burns and itches severely - diagnosed with pouchitus in January ( after suffering symptoms since June) through pouchoscopy.I went to A&E last week with a potential blockage and had a CT scan (my bowel started gently moving before the scan) was told no clear obstruction but dilated bowel - wasn’t told why or what it could be. Discharged at 6am with no info, still waiting for the admission info on my NHS app. .Have been on cipro for months it’s not even working anymore. When initially started it, it slowed my bowel movements down and really helped. Now it’s asif I’m not even taking anything.I’ve started to get blood in some stools, my bum burn is so bad that I’m up crying all night sat on a hot water bottle, or in the bath after every movement (yes I have products with lidocaine in etc), loperamide isn’t doing anything to slow my bowel down. I’m up all night, I’ve started being sick at times from pain / stress, in the day time I’m so tired and my bum is still so sore I can hardly walk / do much. My back hurts, I’m dehydrated, I’m restricting food because it makes me empty my pouch more if I eat more, I’m sad all the time because I’m so unwell, I barely leave the house anymore as I know I’ll need a bath if I empty my bowels.I have an appointment with my surgeon on the 19th and I don’t know what to do. I’m not sure why my bowel was dilated on CT scan. nothings working and I am at the point where I’m just surviving and getting by. I’m currently studying a masters degree and it’s going downhill, fast.I hated my stoma, i got blockages regularly, the bags burned my skin, i had leakages all the time, like 3/4 times a day I don’t want to go back to it but I don’t know what to do. I can’t carry on this way much longer, there’s only so much someone can take 😫.Just wondering if anyone has any advice, been through anything similar, has any suggestions, anything really. Currently been awake since 2.30am on the toilet every 30 mins and in the bath after each time, led on my stomach to take pressure off my bum. 😫. ... See MoreSee Less

Latanoprost side effects?

I've had my pouch for 32 years following diagnosis of FAP.In December, I was prescribed latanoprost eye drops to prevent Glaucoma.Since then my pouch has behaved unusually. Very liquid faeces often, difficulty emptying and worsened continence.I stopped taking the drops 2 weeks ago and the pouch function has returned to what I regard as normal.I had assumed that it was coincidence that pouch function changed about the same time as starting the drops, but I now feel there is a connection.Anyone else had similar experience? ... See MoreSee Less

When getting travel insurance what does the j pouch fall under. Need to make sure I'm covered

Thanks all ... See MoreSee Less