You can now read posts from the Pouch Support UK Forum directly from this site. If you are a member of the group you can link directly to posts in the facebook group to react or respond. This is a private group. If you are not currently a member, log into Facebook and submit a join request to the group J Pouch support (UK specific).
Please note that people post their personal experiences, which might not be relevant or appropriate for you. The Pouch Support UK Forum does not offer medical advice and it is your discretion whether you try any tips and recommendations posted here. If in doubt consult a medical professional.
🤣🤣 let me know when you’ve worked it out lolThanks Shandel ... See MoreSee Less
I'm thinking of going to Australia to visit my brother next year. Has anyone done a long flight like this? I'm slightly concerned about the dehydration effects and the change in air pressure on the plane. It's been a long time since I did a long haul flight with my pouch ... See MoreSee Less
Hi allDoes anyone use Ilex skin protectant and if so do you know what’s happened to it?! I can’t get hold of it from anywhere and I really rely on it. I’ve tried lots of other things but nothing else comes close. Thanks x ... See MoreSee Less
Hello, does anyone have to self catheterise? I’ve had abit of a rough ride since having my take down surgery as the pouch passage keeps closing abit, instead of having dilations all the time I’ve had the option to self catheterise to pass stool. Has anyone got any advice on this? Thanks 🙂 ... See MoreSee Less
Had my surgery Monday and still in agony, how much longer till it stops hurting SO badly 😩 ... See MoreSee Less
Hi Any J pouchers out there opted for vaginal/natural delivery as opposed to C section? ... See MoreSee Less
Second post today … so considering surgical options … after small bowel perforation post gall bladder op… currently defunctioned pouch and loop ileo … my j pouch is reasonably well behaved but has been a little problematic last 18 months party due to gall bladder issues … had my pouch done at st marks 12 years ago … just wondering if I decided to go back to an ileo what the current research / opinion is about whether pouch should be removed ( and end ileo formed ) which I know is a big op OR whether OK for j pouch to remain in situ ( defunctioned ) and live with loop ileo …. I will be speaking at some stage to surgeon at local hospital ( not v experienced in pouch surgery ) but interested to know what current line of evidence/ opinions are on this subject, particularly anyone that’s asked the same Q to a surgeon from st marks or John Ratcliffe hosp. Thank you 🙏 ... See MoreSee Less
Hi, is anyone able to advised…I have a flexible sigmoidoscopy examination this Friday coming and I have been asked to take an enema and hour before my appointment.I was wondering does an enema actually work with a jpouch and if it does and I’m safe to travel with the effect of it.Has anyone had this enema before?I have had jpouch since 2011 due to UC and have no issues. This is a routine check as very small trace of blood in my stool.Thank Lorri x ... See MoreSee Less