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Pouch Nurse team – Innovations in pouch support and…

St. Mark’s hospitals award winning pouch nurse team featuring pouch nurse specialists Petya Marinova and Rali Marinova who were talking about “New trends and Innovation in Pouch Care and Ongoing support’ followed by a Question & Answer interaction with an audience of people with a ileoanal pouch (j pouch) or considering pouch surgery.

Some of the subjects discussed in the Q&A included :-

  • Dealing with blockages
  • Pouch emptying issues
  • Vitamin B12 deficiency
  • “Butt burn”
  • Dehydration
  • Catheterisation and enemas
  • Educating GPs and other health professionals about pouches

Some of the links mentioned in the Q & A are below :-

https://pouchsupport.org/are-you-getting-enough-hydration-how-to-make-st-marks-solution/

https://pouchsupport.org/contacting-the-pouch-team-at-st-marks-hospital/

https://pouchsupport.org/j-pouch-and-vitamin-b12-deficiency/

https://pouchsupport.org/ileoanal-pouch-report-2017

https://pouchsupport.org/medic

Janindra Warusavitarne – Advances in laparoscopic approach to J…

Janindra Warusavitarne, a consultant colorectal surgeon at St Mark’s Hospital in London, is a pioneer in laparoscopic pouch surgery (sometimes known as keyhole surgery). Janindra, who is a patron of Red Lion Group, will compare the laparoscopic approach with the more traditional open J pouch surgery techniques.

This video was recorded on 16th May 2023 on behalf of the Red Lion Group.

About Mr Janindra Warusavitarne

Mr Janindra Warusavitarne, is a Consultant Colorectal Surgeon, specialising in intestinal failure, inflammatory bowel disease, Anal fistula, haemorrhoids and colorectal cancer.

He is the lead surgeon for inflammatory bowel diseases at St Mark’s Hospital, London, an honorary senior lecturer at Imperial College and conjoint senior lecturer at the University of New South Wales. He is part of the executive team conducting the European Board qualification for colorectal surgery and a visiting scientist to the Garvan Institute of Medical Research. In addition he sits on the education committee of the European Society of Coloproctology.

Janindra is considered a key opinion leader and innovator and has been involved in many new procedures such as video assisted fistula treatment and laser treatment for haemorrhoids and anal fistula.

Mr Warusavitarne relocated from Australia in 2010, when he was offered an appointment at St Mark’s Hospital in Harrow, a national and international referral centre of excellence for intestinal and colorectal disorders.

After completing his surgical training, Janindra undertook full-time research (focusing on the genetics of colorectal cancer) and was awarded a PhD from the University of Sydney, Australia. He has extensive experience in minimally invasive surgery and has been innovative in developing minimally invasive surgical techniques.

Janindra Warusavitarne – Advances in laparoscopic approach to J pouch surgery

Ellie Bradshaw – Biofeedback in J pouch care

Biofeedback and the importance of the pelvic floor in J pouch care. Ellie Bradshaw, formerly gastrointestinal specialist nurse and biofeedback specialist at St Mark’s Hospital, now at Princess Grace. Ellie is also CNS (Clinical Nurse Specialist) Biofeedback, The Biofeedback Service at The London Digestive Centre.

Recorded on 26 April 2023 on behalf of the Red Lion Group.

Biofeedback and the importance of the pelvic floor in pouch care.

Toby Hammond – Treatment of Fistulas

Valerio Celentano – Ileoanal pouch formation and revisional surgery…

Valerio Celentano is Consultant Colorectal Surgeon at Chelsea & Westminster Hospital NHS Foundation Trust, and Head of J-Pouch One Stop Clinic at Chelsea & Westminster Hospital. Ileal pouch-anal anastomosis (IPAA) after total proctocolectomy (removal of entire large bowel and rectum) is a surgical procedure for ulcerative colitis refractory to medical treatment and majority of patients with familial adenomatous polyposis (FAP), as an alternative to permanent end ileostomy.

Although many patients undergoing pouch surgery have satisfactory functional and long-term outcomes results, the procedure is complex and associated with problems and complications in the short- and long-term. Several complications following pouch surgery can lead to the pouch requiring removal (pouch excision) or permanent diversion (need for ileostomy) and reported rates can be up to 20%. This spectrum of conditions carries the very unfortunate and likely inappropriate name of “pouch failure”. Gaining experience in pouch surgery is hard as the procedure is performed infrequently across many hospitals, as reported by the UK Pouch registry, outlining that the average number of pouches performed in English institutions was low and one quarter of the surgeons undertaking this operation had performed only one case over the last five years. The interactive talk will discuss the challenges of ileoanal pouch surgery and some of the surgical complications that can benefit from revisional (redo) pouch surgery.

An institutional initiative to promote standardisation of multidisciplinary care in IPAA surgery will also be presented. Contact Details:

For Valerio Celentano and Chelsea & Westminster web: www.chelwest.nhs.uk/ibd-surgery-centre

email: chelwest.j-pouch@nhs.net

This video was recorded on behalf of the Red Lion Group on 9 March 2023.

Sue Clark – Pouch dysfunction

Professor Sue Clark (Consultant Colorectal Surgeon, St Mark’s Hospital and Professor of Practice (Colorectal Surgery) Department of Surgery and Cancer Imperial College, London) talking on the subject of J-Pouch dysfunction followed by Q&A.

This webcast was recorded on 23 February 2022 on behalf of the Red Lion Pouch Support Group.

Phil Tozer & Lillian Reza – “treatment of fistulas…

Featuring Phil Tozer – Consultant Colorectal surgeon at St. Mark’s Hospital, London and Lillian Reza – St. Mark’s Academic Institute.

“Treatment of Fistulas associated with Pouches“

Recorded as part of the Red Lion Group Zoom into Summer series, recorded 8 December 2021. For people with IPAA (Ileal Pouch Anal Anastomosis) also known as J Pouch or internal pouch. Advice and Guidance for people with a Pouch and issues with Fistulas.

Recommended annual blood tests for j-pouch patients

This document explains the blood tests that St. Mark’s patients usually have done as part of their annual checkup at the hospital.

If you no longer have follow ups at St. Mark’s or are not a patient there, then you can request that your G.P. does these as part of your Annual Long Term Condition review.

These tests may be carried out during your routine physical examination or may be used as part of a more comprehensive set of tests.

Blood tests explained
Download Now!2142 Downloads

Ellie Bradshaw – “Crouch for your pouch” Pelvic Floor…

Ellie Bradshaw, Colorectal/Biofeedback Nurse formerly at St. Mark’s Hospital and now at Princess Grace Hospital, London.

“Crouch for your Pouch” – Pelvic Floor Perfection and the Importance of Emptying.

Recorded as part of the Red Lion Group Zoom into Summer series, recorded 13 October 2021. For people with IPAA (Ileal Pouch Anal Anastomosis) also known as J Pouch or internal pouch. Advice and Guidance for people with problems with pouch emptying, partial emptying and leakage.

Petya Marinova – St Mark’s Hospital: Life after the…

Petya Marinova, Pouch nurse specialist at St. Mark’s Hospital in London talking about Life at St. Mark’s post pandemic and describes various initiatives in place to improve pouch care including various pouch care protocols being created by the pouch team at St. Marks Hospital to share with the wider medical community.

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