survey Archives - J Pouch support charity

Join St. Mark’s Study: Help Shape a Sexual Function…

Join St. Mark’s Study: Help Shape a Sexual Function Questionnaire

A research team at the St. Mark’s Hospital Academic institute is looking for volunteers to help refine a sexual function questionnaire which will be used to support patients undergoing non-cancer colorectal surgery.

Fellow pouchees and past pouchees,

Those clever people at the St Marks Academic Institute have asked for our help in seeking 20 – 25 volunteers who can help them with some crucial research. Please consider taking part in this study and email Shivani at LNWH-tr.sexprom@nhs.net if you would like to take part.

The sex-PROM study will develop a sexual function questionnaire which will be used to support patients undergoing non-cancer colorectal surgery. This includes people like us who have undergone or are undergoing ileo-anal pouch formation.

The team has now developed the initial questionnaire. The next phase is to test the questionnaire to ensure it is relevant to patients, easy to understand and effectively supports patients after surgery. Participation in this phase will involve a short, 30 minute interview via Microsoft Teams/Zoom at a convenient time for you. During the interview, you will be asked to fill out the draft questionnaire and provide your feedback on the layout, wording and response options to ensure they are relevant and easy to understand. That’s it! – a 30-minute zoom call at a convenient time during which you will be asked to review a form and give your feedback!

The study is open to men and women and you do not need to have a sexual dysfunction to take part. All responses will be anonymised and treated in strictest confidence

Thank you for your consideration, on behalf of Shivani and the team at the St Marks Academic Institute.

David Davies
RLG Chairman

News

Covid-19 related GI symptoms in ileoanal pouch & stoma…

Covid-19 related GI symptoms in ileoanal pouch & stoma patients

The St Mark’s Hospital Stoma and Internal Pouch care team is in the process of conducting a study on gastrointestinal effects of Covid in stoma and pouch patients and they have asked us to share the link to their online survey.

See the link below for further information and to take part if you choose to do so.

Survey

News

J-Pouch Fistula Study

Do you have a pouch anal or vaginal fistula? If you are over 18 years of age AND have ever had a pouch fistula – We would like to hear from you!

For further information go to: https://delphimanager.liv.ac.uk/pavfcos
or email us at lnwh-tr.pavfcos@nhs.ne

News

Mental health support for pouchees and ileostomists – survey

Zeina Bushnaq, a postgraduate researcher at the University of Roehampton, is doing a Doctorate in Psychology and has a particular interest in the mental health support offered to pouchees and ileostomists.

She is currently looking for volunteers to complete a simple, online survey to help with her research. The results will provide insight and guidance into the future mental support for pouchees, potential pouchees and ileostomists. Ten minutes of your time to help improve the prospects and quality of mental and emotional support for pouchees, potential pouchees and ileostomists in the future. What’s not to like?

Zeina’s project has been approved by the University Research Ethics Committee and all answers will be treated in complete confidence and anonymised.

Please click below for more information and to take the survey.

Click here

Zeina needs 60 of each group of people to complete her research, please help her to achieve her goal.