Events Archives - Pouch support charity

Everything you wanted to know about your internal pouch….

Everything you wanted to know about your internal pouch but were afraid to ask

Are you aware of the wealth of information available on the Red Lion Group website about Pouch history and living with a Pouch?

Over the years, we have posted personal stories from pouch owners and video recordings from the experts and pioneers in pouch surgery from St. Mark’s Hospital and academic institute.

You can find this information on our Stories page. Or look at the Resources page and browse recordings of Information Days presentations.

Some highlights from previous Information Days:-

Personal reflections on 40 Years of Pouch Surgery by Professor R. J (John) Nicholls
Modern developments in Pouch Surgery by Janindra Warusavitarne
Fertility, fecundity and pregnancy with a pouch by Sam Evans – Pouch Nurse Specialist
Pouch emptying and Biofeedback by Ellie Bradshaw – Lead Nurse, Biofeedback Dept.

So, whether you have a j-pouch, s-pouch, w-pouch or considering pouch surgery, why not attend this year’s Information day and hear expert advice first hand on pouch related topics and meet other pouch owners and pre-pouch patients. This year we will be commemorating the 25th anniversary of the Red Lion group.

The 25th anniversary Information day will take place on Saturday 27^thApril 2019 at
St. Mark’s Hospital, Watford Road, Harrow, Middlesex HA1 3UJ.
See Getting here

Here is the Information day agenda

TIME	PRESENTATION
10:00-10.30	Registration with tea/coffee and biscuits
10.30-10.50	Welcome and AGM
10.50-11.00	Personal reflections on the Red Lion group 25 years on Dr. Martin Peters, Pouchee and first Chairman of the RLG
11.00-11.10	My parallel journeys – pouch and RLG Tim Rogers, Founder RLG member, first editor of ROAR! And still on the committee after all these years!
11.10-11.40	Modern developments in Pouch Surgery Professor Omar Faiz, Consultant Colorectal Surgeon and Clinical Director at St. Mark’s Hospital
11.40-12.10	Pelvic floor perfection and the importance of proper emptying Ellie Bradshaw, Lead Nurse, Biofeedback Dept.
12.10-13.15	Lunch – a selection of sandwiches and cakes
13.15-13.45	Long term medical issues with a pouch/UC Dr Jonathan Segal – Medical Research Fellow
13.45-14.15	Diet and your pouch Gabriela Poufou, Dietician, St. Mark’s
14.15-14.45	Tea and coffee break
14.45-15.55	Personal pouch journeys and workshops 1) Female pouch issues Theresa Parr 2) Male pouch issues Chris Browne 3) Pouch family and friends Gill White
15.55-16.00	Evaluation and close

You can download the agenda below.

Info Day Agenda 2019

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If you would like to attend please download the registration form below. Note that the cost is only £8.00 for members and member’s guests and £10.00 for non-members (cost includes lunch and refreshments). Please complete the form and remit payment as soon as possible to guarantee your place as spaces are limited. If you have pre-registered, please send form and remit payment by 1 April to guarantee your place.

Info Day 2019 Registration

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If you are not already a member, why not join now and take advantage of the discounted rate and other member benefits. You can join here.

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We look forward to seeing you there. Come celebrate our 25th anniversary with us!

Celebrate the Red Lion Group Silver Jubilee at 2019…

2019 is the SILVER JUBILEE of the Red Lion Group; providing advice and guidance for pouch patients, their friends and family for a quarter of a century.

The Information Day on 27 April 2019 will celebrate the Silver Jubilee with an address by Dr Martin Peters, who was the first RLG Chairman way back in 1994. Martin will be reflecting on RLG then and now and on his own reflections about living with a pouch for the last 25 years.

Book your place by clicking the button below.

Information Day 2019 – book your place now!

Hopefully, you have already saved the date for the Red Lion group Information Day and AGM, 2019, which will take place on Saturday 27 April at St Mark’s Hospital, Harrow. The Red Lion Group Information Day is one of the most informative events for patients, prospective patients, friends family and health care professionals with an interest in Pouch Surgery.

You will have the opportunity to hear from some of the leading professionals in the field of Pouch Surgery practise and research and interact with fellow pouchees, prospective pouchees and health care professionals. You can view videos from previous information days here on the Red Lion Group website.

Spaces are limited and you are recommended to register your intention to attend as soon as possible. Attendance fee (which includes refreshments and lunch) is £10.00 for non-members and £8.00 for members.

You can book your place by subscribing to the Information Day mailing list by clicking the link below.

You will be sent regular updates on the agenda as they become available and payment instructions in due course.

Confirmed Speakers

The Information Day on 27 April 2019 will celebrate the Silver Jubilee with an address by Dr Martin Peters, who was the first RLG Chairman way back in 1994. Martin will be reflecting on RLG then and now and on his own reflections about living with a pouch for the last 25 years.

We are delighted to confirm that Elissa Bradshaw, Clinical Nurse Specialist in Biofeedback Therapy at St Marks Hospital, will be speaking about the importance of efficient pouch emptying, the mechanics of pouch emptying and how you can empty your pouch more effectively.

Biofeedback therapy is an effective treatment for bowel dysfunction. The service at the Sir Alan Parks Physiology and Neuromodulation Unit has been successful in providing biofeedback therapy for 30 years, where treatments have extended and evolved to help both the physical and psychological needs of pouch patients. It is particularly useful for pouch patients, who may experience a variety of difficult symptoms including increased bowel frequency, evacuatory dysfunction and incontinence.

You can read more about Bio Feedback research at St Marks Hospital here.

Date announced for 2019 Information Day

An initial announcement that the Red Lion Group Information Day and AGM, 2019, will take place on Saturday 27 April at St Mark’s Hospital, Harrow. This will be another action-packed day catching up on the latest topics of interest to pouchees, potential pouchees and relatives and friends of pouchees! All welcome but numbers will be limited. Please keep the date free! More information will follow as the agenda firms up.

Chairman David Davies presents gift to speaker Prof. John Nicholls at the 2018 Information day.

Kangaroo Club – Information Day

The Kangaroo Club – a pouch support group based in Oxford – is holding its next annual Information Day on Saturday 6^th October 2018.

Cost: Free of charge

Time: 10:00 a.m. – 4:00 p.m.

Venue: John Radcliffe Hospital, Oxford

The aim of the Kangaroo Club Information Days is to give a chance to meet other people who have had colorectal surgery or who are eligible for such surgery. As well as time being given for informal discussion with other attendees, there is a full programme of more formal sessions led by medical staff from the Oxford Radcliffe Hospitals NHS Trust .

The Information Day on 6^th October 2018 will include a full programme of sessions covering:

Colorectal surgery as a specialty
Pouch surgery: developments and variations
What is normal?
About Occtopus and The Kingston Trust
Round table discussions – as suggested by pouch owners and for their supporters
Questions and answers with the Colorectal Nursing team

For more information and to register to attend please click here

We look forward to seeing you there.

Information day 2018

The 2018 Information Day took place on Saturday 12 May 2018 at the St. Mark’s Hospital in Harrow.

We were delighted to welcome over 80 attendees including pouchees, potential pouchees and medical specialists

2018 marks the 40th anniversary of the invention of the Pouch at St. Mark’s hospital and we were delighted to have Professor John Nicholls one of the pioneers and foremost experts on the subject as keynote speaker giving his personal reflections on 40 years of the pouch operation.

David Davies (RLG Chairman) with Prof. John Nicholls (a.k.a *the Rear admiral*)

David Davies (RLG Chairman) with Stephen Want

David Davies with Stephen Want, RLG member, who gave a talk about his experience as one of the earliest recipients of the pouch

David Davies with Lisa Allison after her presentation on the subject “Pouch Surgery Complications“. Lisa is a Pouch nurse specialist at St. Mark’s hospital and former Chair of the Red Lion Group.

David Davies with Dr Jonathan Segal of St. Mark’s hospital, after his presentation “Pouch Research Update – medical & surgical perspectives” .

David Davies with Mr Janindra Warusavitarne of St. Mark’s hospital, after his presentation on the subject “Modern developments in Pouch Surgery“.

David Davies with Miss Sam Evans after her presentation of “Fertility, fecundity and pregnancy with a pouch“. Sam is a Clinical Nurse specialist in pouch care at St Mark’s hospital.

There were also a number of work shops and of course food & beverage.

You can find recordings of the presentations from this years event here on the RLG web site.

We look forward to seeing you all again next year!