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“Can’t wait” and “medic alert” card for J Pouch

“Can’t wait” and “medic alert” card for J Pouch

We are delighted to report that Red Lion Group has produced a “Can’t Wait” / “Medic alert” card specifically designed for “pouchees”!

Updated 29 June 2023

This is the first such card designed exclusively for people with an ileal-anal pouch (IPAA) or J pouch. One side of the card is useful if you are caught short and need urgent access to a toilet. The other side is a Medic Alert which displays the universal “Medic alert” symbol and a QR code which links directly to a page on the Red Lion Group website containing a simple pictorial description of the IPAA surgical procedure and other important information for pouchees and medical practitioners regarding the management of patients with an internal / J pouch.

All Red Lion Group members will receive the card free of charge, distributed with the latest 2021 edition of our ROAR! magazine. If you haven’t received yours, or you are a non-member and would like one, contact our membership secretary Gary Bronziet at membership@pouchsupport.org.  

New members will receive the card with the latest edition of ROAR! upon joining.

For non-members, we suggest a small donation to cover cost and postage – but why not become a member (for just £10.00) and receive the other benefits of joining the Red Lion Group?

You can become a member at pouchsupport.org/join

Click on SCAN ME to view the medic alert information

If you would like to purchase a RADAR key, which gives access to disabled toilets, we recommend that you purchase it from Disability Rights UK at https://shop.disabilityrightsuk.org/products/radar-key

Events

Ellie Bradshaw – “Crouch for your Pouch” recording available

Membership Secretary Blog

Greetings all and hope this finds you well. Going forward I will be posting regular news updates in the form of a BLOG. I hope you find this useful! If you have any questions about contents herein, please email me at membership@pouchsupport.org

Best Wishes

Gary Bronziet

RLG Membership Secretary


Published 19 October 2021

Ellie Bradshaw – “Crouch for your Pouch – key emptying tips” recording available”

Last week’s webcast by Ellie Bradshaw, formerly gastrointestinal specialist nurse and biofeedback specialist at St Mark’s Hospital, now at Princess Grace, on the subject “Crouch for your Pouch – key emptying tips” is now available on the Red Lion Group’s YouTube channel.

This was a fascinating and helpful webcast, followed by an interesting Q&A session. If you missed out, or wish to view it again, you can see it here.

Ellie Bradshaw – “Crouch for your pouch” – key emptying tips

Registration is also open for our next Open Forum on Monday, 1st November.

To view recordings and/or register for events go to our Events page pouchsupport.org/events.


Published 24 September 2021

Petya Marinova Recording available

For those that missed it, and for those that want to see it again, a quick note to let you know that the recording of the webcast by Petya Marinova, Pouch Nurse Specialist at St. Mark’s hospital, is now available for viewing.

Registration is also open for our next Open Forum on 4th October and the next webcast on 13th October by Ellie Bradshaw titled “Crouch for your Pouch – key emptying tips“

To view recordings and/or register for events go to our Events page pouchsupport.org/events.


Published 10 August 2021

“Can’t wait” / Medic Alert card

By now, registered (paid up members) should have received the latest (Summer 2021) edition of our ROAR! magazine which contains our widely anticipated “Can’t Wait”/Medic alert card!

Hope you have received yours and will find it useful. You may have noticed that the “Medic Alert” side includes a QR code, which is a short cut to the medic alert information on our website.

Take a look as it contains a wealth of useful information for pouchees and medics.


How to use a QR code

Many of you will have become familiar with QR codes (if you weren’t already!) due to COVID and the requirement to check-in at many locations.

Depending on your smart phone, you may be able to access the web page by simply opening the camera on your phone and pointing at the image. Give it a try. You can try it here if you don’t have the card yet.

If that doesn’t work, then you may need to download a FREE QR code reader from the App store or Google Play. Search in the App store for QR Code or QR Reader or similar and you will find many free apps!

Failing that, you can always access the same information by going to pouchsupport.org/medic


Gabriela Pouchou recording and slides now available.

Last week’s webcast by Gabriela Pouchou, Dietician St. Mark’s Hospital, on the subject “Healthy eating for Patients with an Internal Pouch” is now available on the Red Lion Group’s YouTube channel.

This was a fascinating and helpful webcast, followed by an interesting Q&A session. If you missed out, or wish to view it again, you can see it here.

Gabriela has also kindly shared her PowerPoint slides with us, which you can find on the resources section of our website. see pouchsupport.org/resources


“Save the date” Annual General Meeting (AGM)

The 2021 Annual General Meeting (AGM) of the Red Lion Group will take place on Zoom, on Monday 6th September at 7:00 pm. Formal notification will be sent out soon.

We expect this to be a short meeting and will be followed at 7:30 pm by the regular monthly open forum.

Please Register your attendance at pouchsupport.org/events to attend the AGM and/or the Forum.


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